Changing the world one smile at a time

The latest and greatest in the life of one spunky little girl named Arianna.


        Arianna was diagnosed with Angelman Syndrome March 20, 2006.  Five Years Ago.



On SEPTEMBER 18, 2011 Stephanie, Arianna's Mom, will run her first MARATHON to celebrate the accomplishments that Arianna has made in the past five years.  She will also be raising $5000 towards research for a CURE for AS! (for those of you that don't know Angelman Syndrome has been cured in the mouse model) WE CAN BEAT THIS!

"I have taken the lessons my non verbal daughter has taught me about strength, perseverance, love and life, and challenged myself to complete a full marathon.  Every day I ask my daughter to do things that are very hard for her, it's time I ask the same of myself." - Stephanie

You can help raise money here (every $1 counts):

Follow Stephanie's Blog at:
http://ariannasawesomeadventure.blogspot.com/


http://www.regiehamm.com

Fellow AS Parent and Artist Regie Hamm releases his new Book "Angels and Idols" and his new CD "Set It On Fire"





View Pictures From 2009 Walk A Thon Here


FAST GALA 2010

A HUGE thank you again this year to Colin Farrell and the FAST Board of Directors who made it possible for us and many other families to attend the Foundation for Angelman Syndrome Therapeutics 2010 Gala.  We had an opportunity to meet up with our online families, meet new families, celebrate our kids, and help raise money to find a cure.  This year we were once again able to meet Colin in person.  We were able to share some personal stories with Colin and other families throughout this amazing evening.  As our family grows so do the smiles and stories.  Every family has an inspirational story to share.  We only wish there were more hours in an evening.  You can go to the Gala photo gallery to see some of our pictures of this year's event.


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